• Home
  • Our Mission
    • Advocating
    • Accomplishments
    • Note from the Founder
  • Work with Us
    • Board of Directors
    • Scientific Advisory Board
    • Professional Testimonials
    • Special Engagements/Media
  • VAMP2
    • Diagnostic Odyssey
    • Genetic Information
    • Patients & Families
    • Registering Your Child
  • Latest News
    • Research Updates
  • Contact Us
  • More
    • Home
    • Our Mission
      • Advocating
      • Accomplishments
      • Note from the Founder
    • Work with Us
      • Board of Directors
      • Scientific Advisory Board
      • Professional Testimonials
      • Special Engagements/Media
    • VAMP2
      • Diagnostic Odyssey
      • Genetic Information
      • Patients & Families
      • Registering Your Child
    • Latest News
      • Research Updates
    • Contact Us
  • Home
  • Our Mission
    • Advocating
    • Accomplishments
    • Note from the Founder
  • Work with Us
    • Board of Directors
    • Scientific Advisory Board
    • Professional Testimonials
    • Special Engagements/Media
  • VAMP2
    • Diagnostic Odyssey
    • Genetic Information
    • Patients & Families
    • Registering Your Child
  • Latest News
    • Research Updates
  • Contact Us

Meet the Founder of vamp2.org

Alexandra Gaudlap


Email: agaudlap@ragingraymondfoundation.org


Contact via email to set up an appointment.



ABOUT VAMP2

In 2018, the first case of a VAMP2 genetic variant was diagnosed in the United States. VAMP2 is now understood to cause neurodevelopmental disorders, such as visual impairments, movement disorders and epilepsy.


This site was created to spread awareness of this rare disease, advocate for the cause, help drive research into the disorder and ultimately look for therapeutic interventions.
As time goes on, more cases will be diagnosed. 


We as parents continue to remain positive for our children's future and hopeful for a cure. If you or a family member have been recently diagnosed, please join our closed Facebook group, "VAMP2 Gene Mutation" for support.


On behalf of all VAMP2 families, I thank you for visiting this site and showing interest in our stories.



 

Join Patient & Family Facebook Group

Updates for vamp2 community

 


A collaborative international research team from University College London (UCL) and Yale University has secured funding to investigate neurodevelopmental disorders linked to VAMP2 mutations.




Read more

 


We are approaching 40 patients, worldwide. Nearly eight times the number of patients in the original publication.




Click to Read Last Paper Published in 2019

Donations

We are now a Non-Profit Organization

If you are interested in donating to our foundation that currently supports VAMP2 (but more diseases in the future), please make it through our foundation website. 

Visit Raging Raymond Foundation Site

Register your child

By registering your child/children with VAMP2.org, it provides valuable information that will help us better understand the progression of the disease. It will allow us to keep you informed through email updates toward developing a treatment plan. This is completely optional. Regardless, you can join our Private Patient & Family Facebook Group. 


 

Click Here to Register Your Child

My Son Inspired Me to Help Others

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