Our Mission

The mission of this web page is to advocate, spread awareness, and support families of special needs children with a rare diagnosis. Although we are a group of families affected by a VAMP2 gene variant, we are also families who will support the special needs community as a whole through research, therapies, and support systems. 

If you are in need of resources or support please fill out the form below and let us know how we can help you. If we do not know the answer, we will do our best to find it or guide you in the right direction.